A little bit autistic?

My mother has been accused of faking her disability. I have been accused of faking my disability. Is that what Channel 4 wants?

They keep trying to negate us over and over again….

Paula Sanchez

The UK’s Channel 4 is currently promoting its upcoming series ‘How autistic are you?’.The blurb asks if you “think you might be autistic?” as a precursor to a whistle-stop tour of reasons you might indeed be autistic:

“Struggle with social interaction, maintaining eye contact, or understanding the expressions and gestures of those around you? Do you have difficulty understanding other people’s feelings and managing your own? Or perhaps bright, loud or crowded places make you anxious?”


This isn’t helpful.

  • When free to create our own spaces for social interaction we form strong bonds and lasting relationships.
  • I have heard of too many children and adults refused assessment or diagnosis because they can do eye contact.
  • We are empathetic of others, we just might need them to communicate in a way we understand.
  • We often know exactly what to do to manage our own feelings, it’s just that external expectations…

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April Wrap-Up: A Long Way To Go 

Now, April is about two days from being over. I don’t think there will be a lot more discussion on very much autism anymore. The next big autism day will be June 18, which is Autistic Pride Day. (I don’t care if you celebrate it, but I do.) I will have my April 2017 Journal up for people to see on this page. Here are a few thoughts on the state of autistic relations today:

It’s obvious we are not where we need to be. The largest known “Autism Charity,” Autism Speaks, still has a negative rhetoric when it comes to the autistic. Parents are still desperately putting their children on gluten-free and other restrictive diets, shoving bleach up their behinds or down their throats desperate for a cure, and cajoling their autistic children into making them act the way they want them to making them act neurotypical. Our current United States President believes autism is caused by vaccines. And we autistic adults are still being largely ignored in the conversation about us.

But, we have made small strides. There are some people out there who want us to be accepted. I like to call them Neurotypical Allies. Organizations are rising. Autistic adults are rising up to be heard. We are writing blogs. We are putting out information. We are learning to care for ourselves. We are learning to speak for ourselves and our kind. We are learning to speak for the autistic.

True, we are making strides. We are starting to move, but here is the truth: we still have a long way to go.

Autism Post 12: Autism Horns Effect 

I was watching Little Big Shots, and saw there was a six-year-old drummer from Brazil who taught herself drumming. She did everything around drums. She told her story, gave Steve Harvey (the host) a pair of drumsticks, and even said her dream was to be a Super Drummer, in her childlike glory. She must be neurotypical, I thought, because she is being celebrated. Let me tell you that any autistic child who takes a special interest in drums is usually put down to a “Fixation” or “Obsession.”

Have you ever noticed that once autism enters the picture, everything seems to have a negative tone to it? A kind of “Autism Horns Effect,” if you will. Imagine a pair of little devil horns, if you will, protruding out of any autistic person’s head, and you’ll get the picture. A special interest, for example, is often encouraged in a neurotypical child (unless they misbehave), while in autism, particularly Applied Behavior Analysis, is discouraged or held over the child’s head, especially if it’s unusual, like an interest in buses. If it’s buses, then that could be a marketable trade down the line! But it’s autistic, so it’s wrong.

Here’s another example: I have linked to another article about how autistic girls’ personalities are known  as “Subtypes.” If they were neurotypical, they would have simply been Personalities! Have you noticed a pattern? Interest or Fixation, Personality or Subtype, it’s all the same. Autistic people are made to think everything they are is wrong, even down to what they want to eat! No wonder so many of us are crawling out of our skin and have meltdowns when we get home. Trying to fit into this world which puts Autism Horns on our heads is trying. If you want to understand, go to a place without your social customs. You know that uncomfortable feeling you get there? We autistics have it all the time. It’s why we often become reclusive, especially when alone.

I wonder what people would think if I wore horns and a puzzle piece all the time because some people see them anyway? Okay, maybe that’s a bit too far, but do you see my point? We autistics are tired of being treated like invalids and morons. We are neither. Stop treating us like that.

April Post 11: Autism Portrayals in Media 

Much of the Autism Awareness talk has died down by now. Even the store displays are showing the leftovers from puzzle piece junk, like keychains and stuff.  

I’ve decided to talk about an issue that seems to plague the portrayals of autistic people in the media. The fact is, nobody is listening to anybody else about how people really are. I know for a fact that it plagues all portrayals, but I am focusing on autism here. I have struggled to find a similar portrayal that falls far short – and needs somebody to explain to these people how – and I found it in Japanese Engrish.  

I’m only giving you this link to the site because it is very offensive, not only to English speakers, but it makes the Japanese look like morons, just because they don’t know the ins and outs that native English speakers do. Now, it’s kind of like this Japanese Engrish unlearnedness that plagues portrayals of autism in the media. Many of us autistic people find most portrayals offensive. So far, the best portrayal I can find is Billy Cranston in the new Power Rangers movie. Otherwise, even little Julia from Sesame Street has some traits that offend autistic people. This comes from people not listening to those of us with autism. 

Now, tell me: would you rather have a portrayal of autism that is accurate and tasteful, or an autism portrayal that is like Japanese Engrish?

On the Road to Being a Real Woman 

I’m not going to lecture you on what constitutes a real woman or a real man. What I’m going to do instead is share with you a realization about what being a woman is, as opposed to being a little girl, in a new aspect. Now, I’ve been critical of the general societal perception that thin is in. I’ve even gone so far as to call the skinny girls of the world “broomsticks” out of sheer jealousy. But this morning, something inside of me changed. It’s not my attitude toward thin is in. It’s my attitude toward the girls and women who fit this particular image. I’m not hateful towards them anymore. I have no reason to tear the thin ones down, simply because they are thin. It’s not their fault they’re thin and therefore beautiful by society’s standards. Just because they were born lucky, doesn’t mean they stay that way.

There is no need to tear a person down, because they’re perceived as having more value than you. It must be hard for them, too, because of this perception that you have to compete.

I’ll admit it. I’m fat. I can’t compete. But knowing this frees me to find the inherent value I have inside myself. There is a purpose to my existence. If there was not, I would not be alive. Believe me, those who love me have fought to keep me on this planet, even though I have had a strong desire to leave at times in my life. Yes, I have had to fight my own desire for suicide. But I have won. To paraphrase Alice Walker, I may be poor, I may be fat, I may be ugly, but I am here.

I’ve also learned that I can get a man on my own, without having to compete with anyone. A real man won’t make you compete. Boys want women to feel insecure, to compete and focus on them, as if the woman is his mother. Boys need mothers. Men need women. Which brings me back to the real woman.

A real woman is not that hard to spot. She is the one who builds women up, not tear them down. She can stand on her own without a man. She can want and desire a partner, but she does not need one. A real woman works on her healing. Trust me, the world wants you to be a girl, because girls are controllable. That’s why the world works to break you as a girl, to freeze you – keep you as a girl. Girls wallow in their hurt. You can see this in earlier posts.  Trust me, I have not quite made it to being the real woman. But I have taken a step toward it.

April Post 10: Meet the Angry Autistic Woman 

Looking over my behavior when I am alone, it disturbs me. I swear, I give obscene gestures to random people that are not there, and I am a constant simmering volcano of emotion. I don’t know where all this anger comes from. My mother does not know about this  I don’t like being an angry woman. I don’t like wanting to explode at people all the time. I don’t like having to relive every single day simmering at the edges, and literally stuffing down my emotions with anything I can find in order, like ice cream, to protect everyone else from my feelings.

But, when I look over all the injustice that I received as an autistic person, I get why I am so angry. The rage I feel inside when I see anything that reminds me of my childhood is unbearable at best. Tonight, I saw an episode of “The Goldbergs” which revolved around theater. I never really fit in anywhere in high school, not even theater. I even tried to spell it “theatre” in order to fit in. Then, as I learned later, I was made fun of behind my back for talking to myself. There is a post about that called “Facebook and the Mellaril Nightmare” if you want to read about it. Truth is, the only time I ever really felt accepted in school was on Grad Night. I guess everybody was trying to make a good last impression. Truth be told, I was finally relaxed and relieved that it was all ending.

I spent years trying to find love and acceptance, because I was always unacceptable. I was unacceptable in class, unacceptable with friends, unacceptable in theater (pretentious snobs!), unacceptable in church, even unacceptable in ASAN (for being too politically conservative). Honestly, I am currently an angry, bitter, lonely recluse, and that’s what everybody wants me to be. They only want me to go away. Is it any wonder I am an Angry Autistic Woman?

Inspiration Porn and Fat Friend Therapy – THE SAME THING! 

I would like you to examine the following items: An In Living Color Skit about the “Lorie Davis Hair Care System,” and an Inspirational Poster featuring two Disabled people. 

 

inspirationporn

Now, don’t get me started on how savagely ugly this In Living Color skit is to fat people by itself. That is a whole other day. But, have you considered how similar the message is to most inspiration porn? “You look (act/will do) good…” “‘Cause I don’t,” is kind of the whole concept of disabled inspiration porn. That’s the problem.  

First of all, there are the people who are being compared. They are divided into two groups: the better and the worse. Obviously, “Cher” and her skinny friends are the “better” and “Lorie” is the “worse.” In the inspirational poster, the people running on springs are “worse.” Who’s the “better” in the poster? YOU. You are the “better” one, simply because you are evidently abled better than people with no legs. This is a comparison contest, with Cher/You the winner, and Lorie/the disabled as the loser.

Sure, you can make yourself feel better by comparing yourself to the disabled all day because you’ll win, apparently, but is that the measurement stick of your worth? How abled you are? Because that’s the textbook of ableism – measuring somebody’s worth by how well they can function in society. So, if a person needs help, they are worth a little less? So, how abled must a person be to be worthy enough to, I don’t know, live? Because many of the Nazi Holocaust practices were experimented on by the disabled. Now, I know that’s a long way from inspiration porn, but that is right up the road from it on Ableism Street. It’s not a place you want to travel down. I have already shown in previous musings that measuring a person’s worth by an unattainable standard leaves so many people out.