Now, let me give you some background: A person who needs a colonoscopy scheduled is usually around 50 years old. By that time, it’s a good bet their parent needs care themselves, if not already dead. That is often the problem with autistic people: their parents worry a lot about who will care for their child when they die. I’ve got a radical idea: why not prepare the autistic child to be capable of caring for themselves?
Now, I know what you are saying: there are autistic people who still need 24-hour care. Perhaps you could teach and schedule somebody to trust with your child in that case…but I’m not talking about that case. I’m talking about an autistic person who can be taught to care for themselves. If you teach them to access community supports out there, and be their own advocate in a hateful and prejudiced world, you might not have to be the usual Snowplow Parent.
I referenced Snowplow Parenting earlier, because it is common in parents of autistic children. Snowplow parenting is the parenting style that does everything for the child, moving all obstacles to success out of the way, like a snowplow. The trouble with that is, the child emerges into adult age unable to deal with obstacles themselves, needing the parent to care for them throughout their life, even when the parent needs care themselves. Now, many autistic adults have had to learn to “adult” as adults. That, my friends, is much harder to do than learning how to take care of yourself in childhood. You’ve heard the saying, “It is easier to raise a strong child than repair a broken adult,” right? It’s a saying for a reason.