It’s Time to Rename Asperger’s Syndrome: How about Autism?

Hans Asperger. A supposed “hero” for the autistic white boys who lived in Nazi Germany….not so much. It has recently been revealed that he sent undesirable children to the execution programs, particularly if they were female, or of “mixed Jewish Blood,” which meant damnation in Nazi Germany. Now some people who identify with Asperger’s Syndrome are in shock and despair, wondering what to do or how to identify next?

I’ll be honest: I never really identified as “Asperger’s Syndrome,” because it did not fit the more-accurate childhood diagnosis I received, and my mother fought for endlessly. Sure, knowing you were different hurt at first, but I slowly realized that knowing your condition/impairment was a real advantage in getting along with the world. Now, back to the question at hand: what to do with Hans Asperger’s legacy? Now, this might seem radical to some, but why not avail yourself to current research and hitch your wagon to Leo Kanner’s horse? What is currently known as Asperger’s Syndrome and a form of autism are basically the same thing, are they not?

Quit trying to separate yourself or your child from the advantages given in being a member of the autistic tribe. Being autistic means that those supposedly strange requests are now reasonable accommodations. Being autistic means that you have a name, tribe and culture to identify with – that involves Ghostbusters. Being autistic means that said culture will love you endlessly and unconditionally, knowing you or your child are one of its own. Sure, your life seems harder because you have an identifiable difference, but isn’t it easier than hitching your wagon to a Nazi?

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Stigmatizing Help: WHY?????

Mariah Carey spoke of first being diagnosed with Bipolar Disorder in 2001. Since she only recently came out of the mental illness closet, I figured she suffered greatly due to the stigma and the secret she held. And it was also true; she admitted to this suffering. Sadly, this is not the only case of suffering due to stigma I can personally account for.
I know a person who came out of the mental illness closet almost immediately after being diagnosed. Unfortunately, she lost a lot of friends along the way. Also, she was blamed for extreme measures being taken to control her by one of those former friends. She suffered through adjustments through medications for a year, and she did it alone.
So, who did she turn to when she needed help for tough financial decisions when undergoing these changes? NOBODY. She and I have large amounts of financial debt and cannot even declare bankruptcy to clear those debts. We are hounded by mail. We are hounded by phone. We are hounded by bad credit scores. And we have no one to turn to in our hour of need. Where is everybody? Everybody we know turned away when we came out of the mental illness closet.
Why do we hate getting help? Why do we discriminate against those with mental illness? Stigmatizing mental illness is only society shooting itself in the foot. Less people seek help, which leads to more hiding, which leads to dramatic confrontations of the jackass-on-a-fast-food-roof kind. Don’t you see? Making help a thing of weakness and vulnerability only makes us weak and vulnerable against the coming drama. We need to stop stigmatizing getting help for your problems. It would have saved years of pain and suffering in Carey’s case.

World Autism Day

It’s mostly been a quiet World Autism Day for me. (I’m not exactly sure my mother noticed it.) I put on my red sweats and relaxed around the house. If we were going out, I would have worn jeans and a red sweater (it was cold). Tomorrow, I’ll wear my red shirt and jeans. It will be warm. I will wear red as much as I possibly can this month.  

Now, there will be monuments lit up blue tonight in honor of Autism Speaks. I’ve learned to see them as they are – brainwashed by Autism Speaks. Autism Speaks uses blue to say that more boys than girls are on the spectrum. So, why ignore autistic girls altogether? Do they not want us to exist? But I digress. Their genetic database campaign is called MSSNG – “missing” something. It’s the same reason they use the puzzle piece. Autism Speaks supports Applied Behavior Analysis – basically withholding love, affection, and even basic needs like food, water and going to the bathroom until we stop being so autistic. Anyway, that hate group Autism Speaks has had enough of my blogspace already.  

I will wear red on World Autism Day. I will wear red as much as I can this month. I am an autistic adult, who is not being listened to because she is an autistic adult. I live at the intersection of autistic and woman, which means persecution from men and from neurotypicals.  

It has come to my attention that Savannah Guthrie wore red this morning, though she did not say why. I cannot assume it was for autism acceptance, but if it was, I would like to say Thank You again like I did on Twitter. Autism acceptance is necessary for the world. It helps with a myriad of problems which exacerbate autistic suffering. 

Kroger April Early Shock

Well, Kroger has decided to get their Autism Awareness out early this year. That was a shock. I know I was expecting it, but something inside me this year has decided to raise anxiety. I mean, stuttering has come out of me this year, too. I don’t like it. 

It’s not quite full-blown yet, but it’s starting up fast. Today I saw two women wearing the Kroger Autism Awareness Shirt – light blue with a “ribbon” made up of primary color puzzle pieces. They haven’t pulled out an infographic station yet, though. As I have said recently, you know how I feel about the puzzle piece. Anyway, the start has hit me hard this year.  

Maybe I ought to ask how those who wear the Autism Awareness Shirt are connected to it. If it means an autistic relative, maybe I can give a few tips on how to help. Who knows?  

I think I need to go self-care a bit right now.  

Autism Awareness – Specific Issues

You’ve seen the blue monuments, the store displays, the big rallies. It’s all about the suffering parents! Those poor paaaaarents, dealing with a demon autistic child! But nobody seems to see how it’s affecting the children, or worse, what happens when those children grow up as broken adults that need repair. Sure, most autism parents tend to make the autism suffering all about them. They tend not to look past the end of their noses. But let’s see how we can deal with them now.

  • On Autism “Awareness” Rallies: Don’t go. There is no need to go to a rally where your fear being booed and worse.
  • On Wearing Blue: I’d avoid it, at least for April 2. People might think you support the hateful actions of Autism Speaks. Most autistic people tend to go towards red, gold or taupe for Autism Acceptance. (Personally, I go red, simply because I have it.)
  • On Blue-Lit Monuments: Take those as reminders that we need to fight for Autism Acceptance.
  • On Store Displays: Take these with a grain of salt. Your experience is an expert one.
  • On Those Poor Paaaaarents, Part 1: Ask them this question: “Are you the one who is autistic? Or is it your child?” “Do you think a child has meltdowns on purpose?” “Do you think a person suffers on purpose?”
  • On Those Poor Paaaaarents, Part 2: Remember, they are made by despair-loving doctors who talk about what the child CAN’T do, as if the doctors know. If they are open to it, teach them the truth.
  • On Autism Speaks Dominance: Take it as a reminder that we still need to fight. Remember, they are anti-autistic scaremongers, no matter what they say.
  • On Not “Looking Autistic” or “Seeming Autistic”: Well, bring up the point that AUTISTIC ADULTS DO NOT ACT LIKE AUTISTIC CHILDREN. (Ahem, excuse my yelling.) It’s true. When you talk about delays, bring up the point that Later Does Not Mean Never.
  • On the basic stereotype that “They’ll Never Amount to Anything!!!!!” – Google Famous Autistic People. You’ll be pleasantly surprised. Remember, autistic people can do anything.
  • On Inequality in Autism Access and Treatment: This is intersectionality in a nutshell. The theory is, suffering is compounded the more you deviate from the white male cisgender neurotypical “norm.”

This list of specific issues is by no means an exhaustive one. Please, comment on ones I need to address. I really want to help.

EDIT: Point included in comment about autistic age on 3/25/18.

Searching for Self-Care Help

Now, I’m getting the ramp up into World Autism Month just as much as any autistic person. We’re definitely feared and hated just as much as any other rich, neurotypical cisgender white male*. (*Other conditions apply to be mainstream, too.) I’m not going to discuss how we are ostracized and misrepresented. Any visit to Autism Speaks will give you a good idea of that. All I have to say is that being cured to most of us sounds like Invasion of the Body Snatchers – killing us and taking over our bodies. We scare you, huh? We’re here, we’re autistic, get over it.  

Anyway, what we really need at this point and can get is self-care and mutual care among autistic people. Most of us are broken, traumatized adults. We are cynical, we are twisted, we are bitter. We need to be nurtured back from the brink.  

I have decided that together, we can give more effective self-care advice than any one of us alone. That is why I have decided that we can search for it on sites which cater to our needs, such as Tumblr. Anyway, sometimes we can do better together.  

Just a note here: World Autism Month is an invention of Autism Speaks. April 2nd as World Autism Day is the only UN-sanctioned World Autism Day. Check with your countries on how long “Autism Awareness” has sanctioned in your own country.  

Why I Can’t Be a Shiny Aspie

TRIGGER/CONTENT WARNING: Discussion/Use of functioning labels,  

 Well, if it isn’t another method of discrimination I’ve just learned about. The Shiny Aspie has come to minimize the perception of autistic suffering.  

Well, let’s see…what is a “Shiny Aspie” in the first place? Well, the Shiny Aspie is a supposedly high-functioning autistic person who throws shade at a person who strives to pass for neurotypical as much as possible, while passing judgement on “lower-functioning” autistic people. Basically, a Shiny Aspie feels they are fine, while wanting a cure for “lower-functioning” autistic people. A Shiny Aspie tries to separate themselves from their tribe to be better than their tribe.  

I used to be a Shiny Aspie, mostly because I was encouraged to appear neurotypical by every society I was ever in. Family, school, church youth group, theatre students…all either tried to Make Cambria Neurotypical Again, or ostracized and made fun of me for being different. The message was clear: “Be neurotypical or be kicked out!” “Be neurotypical or be mocked!” “Be neurotypical or die!” (Hey, the last one was the title of a previous post!) I had to, for survival, become a version of a Shiny Aspie, to strive for neurotypicality, and put down others like me. In other words, for lack of a better scenario, I was like a Jew being a Nazi, or a person of color in a Ku Klux Klan hood – a hypocrite.  

But here’s the problem – I was once a “lower-functioning” autistic person. The doctor told my mother to prepare for me to never get any “better” than I was at age three. I was obviously behind other kids at that point. (Tells you how much doctors know about bringing the hope!) I had to change one stim for another at several points in my life. I spoke stiffly until my thirties. The persecution I suffered throughout my school years was nearly nonstop. I only felt that I fit in during Grad Night, the last night I would ever see any of these people. I still don’t know why most of them are my Facebook friends. I’m still shocked they contacted me.  

Anyway, to think that I am “better” than any other autistic bothers me. We are being segmented and pitted against each other in petty squabbles in order to keep us down and out. The Shiny Aspie has drunk the poisonous Kool-Aid, not knowing they are being plotted against as well. I hope they wake up from their sleep soon.