Autism Warrior Moms and My Mom

I do not consider my mother an autism warrior mom. Warrior moms and my mother are very different. Take autism warrior moms. They prescribe restrictive diets. They have “therapists” beat the children, starve the children and hold their children’s favorite things above their heads until they exhibit neurotypical behavior. Of course, I am referring to Applied Behavior Analysis. They don’t give any rewards until the child passes for neurotypical in the therapists’ eyes. They even pump caustic bleach up the child’s rectum in hopes for a “cure” for autism. And when their children finally grow up and rebel, they often murder the child, and society takes their side.  

My mother was not the usual autism warrior mom. Sure, she’s a warrior and a mom, but she knows that things are there to protect me, not her ego. She never did things like restrictive diets, ABA and CD/MMS to Make Cambria Neurotypical Again. Of course, I was never neurotypical in the first place. She also told me that. I exhibited signs of difference as a baby. Sure, she fought for me to have speech therapy and social training, but not really passing for neurotypical. She explained to me that I was learning how to act in public. In private, I could be myself. She taught me basic life skills, like cooking, cleaning and paying bills. (Of course, with pre-cut frozen vegetables and basic sauces, cooking is really quite easy for me.) Eventually, I will learn to drive. I want to drive badly, so my mother can focus on getting better. What I am trying to say is, I can generally take care of myself, which is more than I can say for most “warrior mom” children out there.  

The difference between my mother and “warrior” mothers is, there was a modicum of acceptance concerning my mother. Once she learned about autism for the first time, she prayed and asked God for guidance. (As you all know, we are Christians.) I think she never really knew about ABA, but I don’t think she would have approved of the techniques. When I had to stim, I did – even if it meant running up and down the hall six times. I am not traumatized by her upbringing.

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Dentist Haze Videos and Meltdown Videos: Yes, They are Related

There is a trend of videos, that, to put it bluntly, just angers me. I heard of gymnast Simone Biles being filmed while still being affected by the anesthesia after the dentist. Sure, it was funny, but it was funny in a way that laughing at an autistic person in meltdown mode is funny. It’s humor for bullies and haters. Why do people do that?  

Trust me; I come from a place of familiarity and some guilt on this one. I used to laugh at drunk people’s foibles on videos. Fortunately, I realized that most people who are drunk are not in their right mind. Yeah, acting not normal is funny, but if laughing at people in distress is your thing, that is sad in itself. And that is the trouble: laughing at people who are drunk, laughing at people who are affected by dentist haze, and laughing at autistic people in meltdown is as cruel as throwing water on a drowning man. 

Speaking of a drowning man, you remember the teens who laughed while filming a drowning man? He died. Due to their laughter and not helping him, his blood is on their hands. You who laugh at people in distress, you are no better.  

Learning to Adapt

I saw a rerun of “America’s Got Talent.” On the show, a deaf woman sang her own original song, with her own original, beautiful voice, and with her own way of feeling out the notes and vibrations; she had her shoes off to feel them through the floor. I thought that bit was amazing. It got me thinking: I know what we do when we have a perceived disability: We adapt. We adapt to get through the world not made for us.

For some of us, the learning process is easy, especially when the person is supported and accepted as they are, without shame or blame. Unfortunately, the vast majority of us have a hard, trouble-ridden process of adapting. I used to speak stiffly and with echolalia well into adulthood, especially since I was not taught how to mimic good speech properly, in the right environment. I know that through childhood and early adulthood, I have been bullied, made fun of, tricked into compromising pranks, and even mocked by adults supposedly watching out for my best interests. However, I later found these adults who looked out for me in a group “program” setting. It was there that I finally felt like I was in the “inner circle” I longed to be in. I finally, in my thirties, found the way to speak with a natural flow and rhythm.That group therapy has been discarded through budget cuts now, but it was the first time I actually felt like I fit in somewhere. It was a new feeling to me; I did not know what to with it at first. The point of the story is, in the best environment, where I am supported and encouraged, I learned an essential skill.

A lot of people with autism do not receive this essential support at all, or not until late adulthood. I guess I am one of the lucky ones. I would like to get some tips on how to create that particular environment online, where I apparently have a tiny sphere of influence. I want to create a space where people can easily be themselves and supported, without blame or shame. I want to create a space where we can learn to adapt and practice adaptation safely. Anyone want to help?

So There is an Outbreak of Measles in Minnesota…..

So there is an outbreak of measles in Minnesota among Somali-descended children, spreading to other vulnerable populations. I want you to understand that. What I don’t want you to do is point the finger at me about it. For the longest time, I thought that, being autistic and scary to a neurotypical population that is afraid of me, that I was the cause of unvaccinated measles outbreaks, in Minnesota and Southern California (at Disneyland, no less), especially since Jenny McCarthy literally blamed her son’s autism for all her suffering in life. But, in this case and others, I have already dismissed my existence as a cause of measles outbreaks, especially since now there are more complex, pointed reasons as to why there is an outbreak of measles they are dealing with in Minnesota. I want you to read the next sentences very carefully. That’s why I have separated them out.

*****

The causes of the outbreak of measles in Minnesota are as follows:

  1. Ableism, represented as Anti-autism
  1. Racism
  1. Xenophobia

The causes of the Disneyland outbreak in Southern California are as follows:

  1. Ableism, represented as Anti-autism

*****

These lists are not finished. First, I want to discuss the discovered causes of the measles outbreak in Minnesota. Let me start with ableism.

Thank you so very much, Jenny McCarthy. Thank you, Andrew Wakefield. Thanks a lot, Autism Speaks. While I won’t go into the extremely non-duplicated, thoroughly debunked, corrupt and hateful so-called “study” of how you think the Measles-Mumps-Rubella vaccine causes autism. I have felt personally responsible and personally attacked because of you. You have made children sick because of my existence. You have murdered over nine thousand children as of July 2015. And the cause of all this pain and destruction? The existence of autistic people. I am autistic. Therefore, you make ME a target. Your hatred of me justifies your actions of denying children their health, their immunity, even their lives. You justify your kills because of me. I am tired of being the cause for the loss of innocent lives.

*****

Now, onto the next two causes, because they are interwoven and intersected. They are Racism and Xenophobia.

Now, when most white American people look at Somali immigrants, what do they see? They see dark skin – race being the previous mark of slavery, and they devalue the person. They see a foreigner – those “evil” people trying to come and take their lives, jobs and livelihood. They see a Muslim – and deem them dangerous, evil terrorists, not realizing that most Muslims HATE those terrorists. (Don’t get me started on some of my Muslim friends’ seething rage.) So, when these dark-skinned foreign so-called terrorists come to them with an issue – their children are getting autism – what do those white American people do? They ignore and deny help to these inferior people. So, what does the ableist, Anti-vaccine camp do? They listen, and recruit soldiers for their own terror. Herd immunity is compromised. And children in Minnesota now have measles, many of them hospitalized because their weak and developing immune systems are defenseless against the onslaught. Now do you see how danger and strife can get a foothold due to racism and xenophobia?

*****

I am not here to bring anybody down, or anybody out. I am simply facing hatred in three intersecting directions of ableism, racism and xenophobia. Now, I know I am not black and an immigrant, but I will fight the diseased rot of ableism, racism and xenophobia right alongside its victims. I do it every day – even in my mind. When children are dying, there is something wrong. One absolutely must speak up for the sake of the future. One must speak up for the sake of the suffering children.

 

Expectation vs. Reality: Valentine’s Day 2017 –

Via Daily Prompt: Expectation

Let’s get one thing straight: Often, reality does not meet expectation, let alone surpass it. I was expecting to be attached to somebody romantically this Valentine’s Day, but I’m not, for example. To me, though, expectation is no big deal. I can deal with a single Valentine’s Day. I have been for years. There is a no-worry plan to deal with Valentine’s Day, or as some singles like to call it, Singles Awareness Day.

1) Drop expectations – What do you have to worry about if you don’t have anyone to expect anything from? You’re totally free from it. I mean, sure, your friends or family may have something to celebrate or expect, but you, don’t worry about it. There is nothing to tether you to expectation.

2) Surround yourself with things and people you love – I’ve done it already this morning: I’ve got my new Doctor Strange Funko mug. I’ve already got my chocolate, my coffee, my favorite pajamas, and my later plans to go out to lunch with my mother, whom I love dearly. Love is the theme of the day; surround yourself with people and things for it.

3) Don’t get bitter – Why get bitter? Maybe you don’t have what they call a “soul mate.” Besides, the “soulmate” theory came from a belief that the human soul was divided into two genders, male and female. I’m not going to get into it, but I believe 1+1=2. You are a whole, complete person by yourself. Besides, would you really want to be in a relationship where the person abuses you because you don’t want to be alone? You know there’s various caveats to that, and that’s one of them. Besides, just because your life hasn’t worked out right doesn’t mean others haven’t either.

4) Celebrate others’ relationships – There are plenty of people to whom Valentine’s Day has a more special significance. For example, my own parents were married on Valentine’s Day. Find someone who has this kind of significance – like a birthday, perhaps? People were born today, too. But I digress. Sometimes you have to absorb another’s positive energy, sometimes you don’t. Don’t worry about it.

I hope I may have been helpful with some suggestions in dealing with this day, if you are having trouble.

ADDENDUM (8:15 p.m.):

My experiment actually worked. We went out to a pretty good place to eat, and I realized this: I could eat onion. (Onion curls, but I digress.) I survived this day just fine.

 

What Does Autism Look Like Anyway? 

When I reveal that I am autistic, or my mother does, we often get this response: “But you don’t look autistic!” Yes, I do. I got my formal diagnosis from the UCLA Medical Center as a child. Do you think I would lie to you? Why don’t you believe me? What does autism look like to you?

According to popular media, autism is usually depicted by a white cisgender male, and usually a child. They are often portrayed as some sort of savant as well. That is an extremely narrow and stereotypical view of autism, and it is not helpful when you reveal it to people to spread understanding among them.

Is it because I am a woman? I can assure you, autistic women exist. They often go into adulthood without their formal diagnosis, often waiting until their fifties to get this diagnosis, often when researching their own children’s or grandchildren’s diagnosis. Just because we are a smaller group does not mean we are nonexistent. That is just ridiculous to think.

Is it because I am an adult? Usually autism is given a child’s face. Also, that person is in meltdown or other extreme distress. We are not always having meltdowns. Meltdowns are usually caused by a trigger. It could be a sight, sound, smell, taste or touch. If you need something to compare the trigger to, look not further than an addiction. Or PTSD. Or various other dynamics which involve avoiding triggers to stay sane.

(The following does not apply to me, but this is often a reason people do not “look autistic.”)

Is it because of my race? There may be more formal diagnosis among white people, but there is also an existence around every known society. I recently saw an episode of Chicago Med with an autistic doctor played by somebody who was black. (Yes, I do say “black.” It’s perfectly OK to see what race a person is. What is not OK is to assign a lesser or greater value to that race.) I applaud Chicago Med for that casting choice. It gives a sort of face to an entire race of autistic people not represented in media. Not to mention that most races are given say, one token representation, and it certainly is usually not with neurodiversity. You usually have to be white for that.

Is it because of my gender identity? Is it my sexual orientation? I could go on and on about how a narrow stereotype locks many people out of perceptions of autism, or various other conditions for that matter.

(Back to what applies to me again…)

Open your minds, people. Autism is not equipped with a specific physical “look” or “act” to be obvious. A specific facial expression or profile does not exist in the autistic spectrum.

When one specific trait, such as autism, is used to describe a group of people, try not to be surprised when the traits not used to describe them vary widely. It would have to call on other traits to be mentioned in common to get a grasp of the people you are describing. Don’t put people into boxes. They don’t fit.

The Infinity Rose for Autism Acceptance

TW: Autism Speaks, “cure” talk 

InfinityRose4.png

In case you have not noticed, I have changed my appearance for April. The changes come to support the Autism Acceptance Movement, which is currently counter to the Autism Awareness Movement. (The Autism Awareness movement has been hijacked by the group Autism Speaks.)

As you are well aware, Autism Speaks is mostly dedicated to “curing” the world of Autism. What you may not know is that Autism Speaks is a combined group, one of its major ones being Cure Autism Now and the National Association for Autism Research, also a group dedicated to “curing” the “disease” of autism. That, however, is not a view held by the autistic community.

According to the majority of the autistic community, autism is a neuro type – a different operating system of the brain. It is wired into the DNA of the individual. You cannot cure it or work against your neuro type; you can only work with your neurotype. The individual is only disabled because their neurotype is not accommodated – their neurotype is not worked with. Now if the neuro type is worked with, the individual will thrive. However, most people will not work with autism – they will only search for a “cure.”

Most autism parents search for a “cure” in vain because they cannot accept that their child will be different, and may not fit into society. They are simply afraid of what will happen to their child because they are different. Some of them even hate their child for being different. “I love my child but hate his/her autism” is evidence of this point.

Now, a little bit about the changes. As you can see, I have chosen the Red Infinity Rose for my personal symbol for April – for Autism Acceptance. The Rose is my favorite flower. In flower language, the red rose symbolizes passion, love, courage and power. The Infinity Symbol is recognized as the symbol for the Autistic Community. I put these together in love and hope, hope for the acceptance and empowerment of the autistic mind to its full potential.