Get Me Out of This Stinking Cradle! I’m Not a Baby!

As I’ve been roaming around online, I’ve come across a disturbing thing: A person faced what has been called infantilization of autistic people. The commenter got a flat-out accusation of lying because she was not “innocent” and “sweet” like an autistic should be. I wanted to go to this person and ask whether or not she understands that autistic children grow up, but sadly, I can’t. This is a problem among people who think of autistic and other disabled people as children. This usually denies us rights that neurotypical adults enjoy all the time.

Now, what are these rights supposed to be? Well….

THINGS CHILDREN CAN’T DO THAT ADULTS CAN, UNLESS ALLOWED

  1. Make Decisions
  2. Hold Bank Accounts
  3. Have Sex, Even in Marriage
  4. Get Married
  5. Anything Sexual
  6. Have a Relationship outside Parent/Child unless allowed
  7. Control their own finances
  8. Dress themselves
  9. Feed themselves
  10. Have their viewpoints considered
  11. Be listened to
  12. Answer their own questions
  13. Have their own interests, including Special Interests
  14. Vote their own way

…And the list goes on and on.

Now, I don’t say we ought to let those who clearly can’t take care of themselves be loosed upon the world with that responsibility. What I am saying is, teach the children age-appropriate responsibility. And do NOT assume that the person is not “getting” the concept now means they will not get the concept later, or even sooner. What I am also saying is, ask yourself if it is appropriate to the person’s age to handle the responsibility you are trying to teach them. Most of the time, it usually is. Adulting should be taught to autistic people. Adulting, that is, handling adult tasks and responsibilities, is usually appropriate to the autistic adult.

Back to the “innocent” and “sweet” way that autistic adults “should” be, according to the person who thinks they should. What makes you an expert on autism? Why do they have to be children? Don’t you know every child eventually grows up? You don’t think an autistic person can be forty years old? Boy, you are in for a shock. I was born in 1977. Do the math.

I don’t need to tell you how I carry myself as an adult. Besides, you would probably think I am lying when I say I am autistic because I am not some sweet little baby you can put in a cradle and control. Why do I even have to justify my autism to you? You won’t listen, anyway.

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“Good Doctor” Reactions

I am going to put “The Good Doctor” to the test. How stereotypical is it? How real is it? Also, does Freddie Highmore try to create a nuanced autistic man, or does he simply put on the Autism Costume? 

That is what I intend to find out. 

10:00 – A simple routine. Good start.  

10:01 – Mess the hair up. OK. 

10:02 – What’s with the line on the ground? 

10:02 – Saved from the bullies…and we have PTSD. 

10:03 – San Jose Airport: Noisy as can be. 

10:04 – Loud crash. Boy is hurt. 

10:04 – Correcting a doctor. OOOH. 

10:05 – “Not Rain Man. High-functioning. Capable of handling his affairs.” Enough with the labels, doc! 

10:06 – Tamlyn Tomita? She looks great! 

10:07 – Savant Syndrome? OK. I can see that. 

10:08 – Another doctor or two. Good. 

10:10 – Sherlock called – he wants his Mind Palace back. *Visualizations* 

10:11 – Trying to communicate his medical emergency….grabs the knife. The boy’s mother finally communicates his intention. 

10:12 – The doctors are arguing. Trying to give consent. 

10:13 – Another doctor. 

10:14 – Alcohol, tubing, gloves. More visualizing. Incision, tubing in, boy is saved! 

10:15 – Boy saved! 

*Commercial Break* 

I promise I am watching. My rapid-fire reactions are part of my style. 

*Back to Show* 

10:18 – Phone call from hiring manager (?). Trustee and hiring manager debate. 

10:19 – Another flashback. Father is not understanding. Abuse. Pet rabbit dead.  

10:20 – A glitch seen. Listen, OK? 

10:21 – Surgery on man. Pustule exploded.  

10:22 – Echocardiogram pushing, no one listens, tries to rush the ER. 

*Commercial Break* 

10:27 – Going through the hospital. Relax, it’s a revolving door. 

10:28 – Rain. More about the dead rabbit. Looks like a meltdown.  

10:29 – Talking about a surgeon’s needs. “No qualified others without autism.” Comparisons of discrimination. “How will the patients react?”  

10:31 – Sean (the doctor) is described as “the weird guy.” Sean found. Medical jargon. Recommended test found nothing.  

*Commercial Break* 

10:37 – “Sean.” Watching an echocardiogram. Subtle defect. Piece of glass described as hypothesis toward problem.  

10:39 – Youtube video saves the boy’s job, maybe? 

10:40 – Trustee finally sees Sean at work.  

10:40 – Flashback: Sean and his brother on an abandoned bus. A present? A toy knife seen in the episode beginning.  

10:42 – The toy scalpel is revealed. So is the mentioned piece of glass. 

*Commercial Break*  

I find the “symptoms” there. I am also finding a more nuanced character, though I might be wrong. I need to consult with other autistic colleagues. 

10:46 – Finally, meeting with the hirer. Now he can show up for the interview.  

10:47 – The boy is being discussed. Still trying to convince the board he’s capable. “Letting things get personal…?”  

10:48 – Doctor is trying to make conversation with Sean, Sean’s not doing that well. Call-out on the doctor. OUCH. 

10:49 – Well, “I would love to make you happy, but…” Boy, does this doctor hate him.  

10:50 – FINALLY, Sean can speak.  

10:51 – Flashback. Oh, boy. Children on top of a train. Brother falls! No movement.  

10:53 – Struggling to speak and communicate well. Finally hitting his stride near the end. Ms. Tomita’s character welcomes him in. 

10:55 – The doctor is dressed and scrubbed. Gloved. Safety spectacled.  

10:56 – Flashback. “You can do anything.” Begin the operation.  

10:57 – Giving mad props. Now an arrogance callout. He wonders if it works, in so many words.  

10:58 – The Season Preview.  

*Show Over* 

All in all, I liked the show. The portrayal of autism is getting there. Obviously, it’s not there yet, but it’s getting there. I understand that this is somewhat of a checklist of sorts, being the introduction of the character, but it seems to be nuanced. I’m getting a second opinion, in case this is inaccurate.  

The Autism Costume 

I have been trying to find realistic portrayals of autistic women on television and in movies. Trouble is, I can’t seem to find them. This troubles me. All of the portrayals I have come across have been, to a certain extent, somewhat stereotyped and basically somewhat some neurotypical’s experience of what “autism” is supposed to look like. It’s as if they are putting on the Autism Costume, a stereotypical portrayal of what somebody else thinks autism looks like. 

How do I explain the Autism Costume? Well, basically, the Autism Costume was initially set by Dustin Hoffman’s portrayal of autistic individual in “Rain Man.” Ever since, the Autism Costume has been, more or less, dominated by this portrayal. There’s hand-flapping. There’s no eye contact. There’s repetitive behavior. There’s fixations, and they’re always portrayed as near-psychotic. There’s bad fashion, dominated by comfort and sameness. Plus, there’s meltdowns. There’s always meltdowns. And the meltdowns are usually violent or injurious.  

Let’s see how I myself fit into this Autism Costume. Hand-flapping? Nope, I don’t do that. Lack of eye contact? Well, I can look into people’s eyes just fine. I taught myself. Fixations? I call them special interests, and can talk about more than just them. And I have no indications toward psychosis. Repetitive behavior? I do have some repetitive things, like generally the same breakfast, but I can vary my routing when I want or need to. Comfort and sameness-dominated fashion? Nah. I have a larger amount of wardrobe colors than my mother! Meltdowns? Well, I had a minor meltdown during the Charlottesville tragedy, but before that, my last meltdown and shutdown was in 2006. Violent meltdowns? Nope.  

So, as you can see, the Autism Costume can be a very inaccurate thing. I mean, I have a fear that I am “not autistic enough” to be believed, because I do not fit into the Autism Costume. As a matter of fact, our local autistic group has just about nobody who fits into the Autism Costume. 

What can we do to destroy the Autism Costume? First, we can believe people when they tell you they have autism. “But you don’t look autistic” is a common reaction, because the person reporting the diagnosis usually does not fit into the Autism Costume.  

Second, we could learn more about autism, from actual autistics. We could get more nuanced portrayals, of we could get more information about autism from people who actually experience it. Again, if you were a bird and needed to learn flying, would you better learn it from an ornithologist or an actual bird? The same thinking can be applied to autistic people. If autistic people were allowed to live and be autistic, maybe we could get some more realistic portrayals of autism in society doing this or that? I’m just saying.

Now, I’m not saying autistic people do not have Costume behaviors. But if the Costume behaviors are all you see, how can you see the people who do not fit the costume?  

 

Autism Warrior Moms and My Mom

I do not consider my mother an autism warrior mom. Warrior moms and my mother are very different. Take autism warrior moms. They prescribe restrictive diets. They have “therapists” beat the children, starve the children and hold their children’s favorite things above their heads until they exhibit neurotypical behavior. Of course, I am referring to Applied Behavior Analysis. They don’t give any rewards until the child passes for neurotypical in the therapists’ eyes. They even pump caustic bleach up the child’s rectum in hopes for a “cure” for autism. And when their children finally grow up and rebel, they often murder the child, and society takes their side.  

My mother was not the usual autism warrior mom. Sure, she’s a warrior and a mom, but she knows that things are there to protect me, not her ego. She never did things like restrictive diets, ABA and CD/MMS to Make Cambria Neurotypical Again. Of course, I was never neurotypical in the first place. She also told me that. I exhibited signs of difference as a baby. Sure, she fought for me to have speech therapy and social training, but not really passing for neurotypical. She explained to me that I was learning how to act in public. In private, I could be myself. She taught me basic life skills, like cooking, cleaning and paying bills. (Of course, with pre-cut frozen vegetables and basic sauces, cooking is really quite easy for me.) Eventually, I will learn to drive. I want to drive badly, so my mother can focus on getting better. What I am trying to say is, I can generally take care of myself, which is more than I can say for most “warrior mom” children out there.  

The difference between my mother and “warrior” mothers is, there was a modicum of acceptance concerning my mother. Once she learned about autism for the first time, she prayed and asked God for guidance. (As you all know, we are Christians.) I think she never really knew about ABA, but I don’t think she would have approved of the techniques. When I had to stim, I did – even if it meant running up and down the hall six times. I am not traumatized by her upbringing.

Revisiting Mental Illness Stigma on TV

Now, I’ve been watching the TV show OutDaughtered. For those not in the know, the father has been dealing with a form of depression. He has been getting encouragement to get professional help, and it takes a final exposure of the mother’s pain to do it. That’s all I’m going to say on this one. 

I’m not saying there is a perfect show about dealing with mental illness stigma. What I am saying is, this show kept the stigma to a minimum. It was mentioned a few times, but it was kept in a more visceral sense, and it was definitely fought with. That’s what I want when dealing with mental illness stigma – fighting it like the plague.  

It’s a funny thing, how different TV shows deal with mental conditions. I know I criticized The Carmichaels in the past about their handling of mental illness stigma, and they are about a black family. To ME, PERSONALLY, these things are completely unrelated. If OutDaughtered were about a black family, or The Carmichaels were white, I would have dealt the same reviews. I still think they ought to fight stigma as much as they can. Somehow, I still believe The Carmichaels would have revisited the issue with mental illness stigma had they not been canceled. As I have said before, I liked The Carmichaels. I just wish they would have fought the stigma of mental illness more.  

 

Going Around in Circles: Blame Does Nothing

Last night, I touched on a subject that I think needs more explanation: the blaming of the other party and the other race for the existence of racism. I think I need to state the obvious: No side is clean. We are all to blame for going around in circles and not taking our part in fighting racism. We are literally giving blame, and therefore power, to the other side for the racism in this country. The result of that? The gaining strength of racism and hate in this nation, of course.  

Let me look at one which has dominated my feed: Republicans vs. Democrats.  

Here’s a typical “infopic” running around the Republican circles: 

DemocratRacism

And here’s a typical infopic running around the Democratic circles: 

gop-racist-bunch_n

See? Both parties are blaming the other, and NOBODY is taking responsibility. Stop picking my pictures apart for one cotton picking second and just acknowledge that blame pictures exist.

Now, let’s look at Black and White racism blame: 

dont-blame-trump-obama-stoked-racism-for-7-years-the-6028658

halfwhite

Stop picking my pictures apart for one cotton picking second and just acknowledge that blame pictures exist.

Once again, going around in circles. Giving our responsibility and power away. Is it any wonder we feel so powerless? We’re giving our power away. If it is up to THEM, what can the US do about it? Nothing. If there is an US and a THEM, truth be told, it’s always the THEM that has all the power. The US is always washing their hands of any responsibility.  

Let me make one thing clear: Hate exists in the minds of EVERYONE. EVERYONE must stand up and fight it. If we give the responsibility for eliminating racism to the “THEM,” we are denying our own responsibility in the process. Since I have to have a house fall on you, here is the falling house: 

WE ARE ALL RESPONSIBLE FOR RACISM.

Too Concerned with Mental Health at Times? 

When I heard an actress, who had recently given birth, was getting health with her postpartum depression, I felt that concern time was over because I somehow knew she was in good hands. I often wonder if that concern was prematurely ended. I mean, since she was in good hands, she was getting good help, right?  

I was wondering: when should you be concerned with a person’s mental health, and when should you be NOT concerned? Also, could you be too concerned? Could that concern actually be thinly-veiled fear? 

When you’re dealing with your own mental health, I think concern should be best had by the person themselves. Mental health persons, when dealing with it, can be their own best advocates. Besides, they know what is best for them a majority of the time, especially in dealing with the tedious trial-and-error method of mental health medication. I am a fan of telling the doctor everything that is going on with your body, mind and mood. I know it’s long and drawn out. I myself had to tell my own prescriber that I was not feeling and functioning when they switched my prescription on me once. I am even glad there is somebody who looks out for me and my mental state as well. Unfortunately, few of those with mental illness have that person who really looks out for them. I know I am blessed in that aspect.  

About excess concern: that is usually a veiled fear of mental illness itself, and the various aspects of the behavior. I must speak again and again of the stigma, fear and hate that surrounds us who have mental illness, and our families. Pushing it under the rug will do nobody any favor. As a matter of fact, stigma gives mental illness a cover of darkness, and darkness is the perfect environment for the illness to spread and fester like bacteria, claiming lives and families as it grown. It is only in exposure to the light of day that we can fight it. 

So, what is the limit of concern? Where do we stop being scared for the person and begin to help the person in their fight for their health?