Get Me Out of This Stinking Cradle! I’m Not a Baby!

As I’ve been roaming around online, I’ve come across a disturbing thing: A person faced what has been called infantilization of autistic people. The commenter got a flat-out accusation of lying because she was not “innocent” and “sweet” like an autistic should be. I wanted to go to this person and ask whether or not she understands that autistic children grow up, but sadly, I can’t. This is a problem among people who think of autistic and other disabled people as children. This usually denies us rights that neurotypical adults enjoy all the time.

Now, what are these rights supposed to be? Well….

THINGS CHILDREN CAN’T DO THAT ADULTS CAN, UNLESS ALLOWED

  1. Make Decisions
  2. Hold Bank Accounts
  3. Have Sex, Even in Marriage
  4. Get Married
  5. Anything Sexual
  6. Have a Relationship outside Parent/Child unless allowed
  7. Control their own finances
  8. Dress themselves
  9. Feed themselves
  10. Have their viewpoints considered
  11. Be listened to
  12. Answer their own questions
  13. Have their own interests, including Special Interests
  14. Vote their own way

…And the list goes on and on.

Now, I don’t say we ought to let those who clearly can’t take care of themselves be loosed upon the world with that responsibility. What I am saying is, teach the children age-appropriate responsibility. And do NOT assume that the person is not “getting” the concept now means they will not get the concept later, or even sooner. What I am also saying is, ask yourself if it is appropriate to the person’s age to handle the responsibility you are trying to teach them. Most of the time, it usually is. Adulting should be taught to autistic people. Adulting, that is, handling adult tasks and responsibilities, is usually appropriate to the autistic adult.

Back to the “innocent” and “sweet” way that autistic adults “should” be, according to the person who thinks they should. What makes you an expert on autism? Why do they have to be children? Don’t you know every child eventually grows up? You don’t think an autistic person can be forty years old? Boy, you are in for a shock. I was born in 1977. Do the math.

I don’t need to tell you how I carry myself as an adult. Besides, you would probably think I am lying when I say I am autistic because I am not some sweet little baby you can put in a cradle and control. Why do I even have to justify my autism to you? You won’t listen, anyway.

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Autism Warrior Moms and My Mom

I do not consider my mother an autism warrior mom. Warrior moms and my mother are very different. Take autism warrior moms. They prescribe restrictive diets. They have “therapists” beat the children, starve the children and hold their children’s favorite things above their heads until they exhibit neurotypical behavior. Of course, I am referring to Applied Behavior Analysis. They don’t give any rewards until the child passes for neurotypical in the therapists’ eyes. They even pump caustic bleach up the child’s rectum in hopes for a “cure” for autism. And when their children finally grow up and rebel, they often murder the child, and society takes their side.  

My mother was not the usual autism warrior mom. Sure, she’s a warrior and a mom, but she knows that things are there to protect me, not her ego. She never did things like restrictive diets, ABA and CD/MMS to Make Cambria Neurotypical Again. Of course, I was never neurotypical in the first place. She also told me that. I exhibited signs of difference as a baby. Sure, she fought for me to have speech therapy and social training, but not really passing for neurotypical. She explained to me that I was learning how to act in public. In private, I could be myself. She taught me basic life skills, like cooking, cleaning and paying bills. (Of course, with pre-cut frozen vegetables and basic sauces, cooking is really quite easy for me.) Eventually, I will learn to drive. I want to drive badly, so my mother can focus on getting better. What I am trying to say is, I can generally take care of myself, which is more than I can say for most “warrior mom” children out there.  

The difference between my mother and “warrior” mothers is, there was a modicum of acceptance concerning my mother. Once she learned about autism for the first time, she prayed and asked God for guidance. (As you all know, we are Christians.) I think she never really knew about ABA, but I don’t think she would have approved of the techniques. When I had to stim, I did – even if it meant running up and down the hall six times. I am not traumatized by her upbringing.

Stigma on TV: The Carmichaels Edition

I’m getting real mad at The Carmichael Show. This is what facing mental illness stigma is like. 

Well, the episode started with the matriarch crying by herself in the kitchen, while nobody else knew. The elder son’s girlfriend, who is a therapist, caught her, and the matriarch would not let her help her. They went out to the living room, where the girlfriend told the men (and got called a snitch), who began a discussion about depression. The discussion following reeked with stigma. There was talk of weakness, of not talking about it, of saying it only happened to rich and (implied) white people, and even self-medication with weed. It literally took holding the day’s plans hostage to actually get her to go to therapy. She eventually went to therapy, but admitted she lied about everything. It took a fight out front in the living room and admitting the pressure she put herself under to get her to go to therapy again.  

Anyway, I summarized the episode because I’m still processing the information. It makes me mad because if this is what we with mental illness face going into various communities, it’s no wonder so many of them are going to jail! Now, I’m not blaming the African American community at large for the crimes of a few. That is not the problem. The problem is stigma. The problem is hate and discrimination against the “crazy” (and yes, that word was used at one point), which will get them locked up in jail or prison before they get help. The largest mental health institution in the United States is the Cook County Jail in Chicago. Perhaps if people were encouraged to seek help for their problems, maybe they would not wind up in jail! It often takes TV shows like The Carmichael Show encouraging getting help to get people to get help. Unfortunately, I feel they dropped the ball on this one. Why not fight the stigma?  

Seek Help Beforehand

Chester Bennington was found dead of suicide. He was 41. I recently came across a tweet that basically said, “If you only want to talk about mental illness when someone famous commits suicide, you’re part of the problem.” Trouble is, that seems to be the only time people are listening. Most of the time, people shut their ears at anything unpleasant. They want to be unrealistically happy. I consider myself a pretty happy person, but I have also been diagnosed with major depression right along with my autism. (Surprise, surprise – this world drives me crazy.) But mental health should be talked about all the time, not just when something terrible happens to shake you out of your “Happy Haze.”

For me, mental health is a daily management. It’s a sort of demand in order to keep performing at my peak. I include my medicines in my routine. There is no shame in the process. I just take my meds and move along with my day. If there is a problem, I talk it over with someone who can help me. Again, there is no shame in the process. Yeah, I live with the specter of stigma when it comes to mental illness, but I know that I am an adult, and I do not have to take on that stupid stigma myself.

I can tell what people are thinking – what if I go off my meds? Then I become irrationally depressed. That’s why I stay on my meds. I can tell people are thinking this, because every mentally ill person on TV has been through a “go off their meds and go crazy” storyline, usually with a dictation that they cannot cope with society and need to be locked up at least for a time. What a negative, hateful, bigoted LIE! Those with mental illness (I use “mentally ill” and “with mental illness” interchangeably) are perfectly capable of living in society, with their meds. Perhaps this dictation from the media is why Chester Bennington never sought help for himself and is now dead. Perhaps seeing illness as weakness is why Robin Williams never sought help for himself and is now dead as well. Perhaps the fear and stigma surrounding having a mental illness is why so many people never get help for their conditions and let their conditions morph into boatloads of unnecessary drama and, in many cases, unnecessary suicide.

Now, let’s get the myth out that a person who commits suicide is supposed to go through with it anyway. I once considered suicide a long time ago. My mother found out about it, and eventually I got help for my own conditions. That’s how I got diagnosed with major depression. Here’s the thing about it all: Once I verbalized my pain, I changed my mind. Here’s the kicker: eventually, a person will change their mind. Maybe it’s in the throes of death itself, but they eventually change their mind. A survivor of jumping off the Golden Gate Bridge himself regretted the act once he went through with it. As he was falling, he prayed to survive. The point of that is, we will change our mind. Perhaps if society made it okay to admit you’re struggling with your own head, we would seek help BEFORE we are falling off the Golden Gate Bridge, so to speak. I want people okay with thinking about unpleasant things. Maybe we can prevent tragedy when we do.

Politics is Now Too Hateful For Me

I try to avoid politics in my work because I want everybody to feel welcome on my site. Honestly, I hate just about everybody involved in politics, and I only stay on social media for my blog. I have thought about quitting many, many times. I absolutely hate that every word of mine is judged by those who would twist the very name of love and/or God itself to their specific agendas. I also hate the fact that everything I say and do means I am either a hater or a snowflake. I even fantasize about leaving the Unites States altogether due to the hellish political climate. So, if you want to discuss politics anymore I will not participate. I am tired of walking on eggshells for the right and the left. So, I am now apolitical. I wash my hands of this political climate. Call me Hitler, call me Stalin, call me every swear word in the book. I am done. I must take care of my mental health in order to survive you. 

So There is an Outbreak of Measles in Minnesota…..

So there is an outbreak of measles in Minnesota among Somali-descended children, spreading to other vulnerable populations. I want you to understand that. What I don’t want you to do is point the finger at me about it. For the longest time, I thought that, being autistic and scary to a neurotypical population that is afraid of me, that I was the cause of unvaccinated measles outbreaks, in Minnesota and Southern California (at Disneyland, no less), especially since Jenny McCarthy literally blamed her son’s autism for all her suffering in life. But, in this case and others, I have already dismissed my existence as a cause of measles outbreaks, especially since now there are more complex, pointed reasons as to why there is an outbreak of measles they are dealing with in Minnesota. I want you to read the next sentences very carefully. That’s why I have separated them out.

*****

The causes of the outbreak of measles in Minnesota are as follows:

  1. Ableism, represented as Anti-autism
  1. Racism
  1. Xenophobia

The causes of the Disneyland outbreak in Southern California are as follows:

  1. Ableism, represented as Anti-autism

*****

These lists are not finished. First, I want to discuss the discovered causes of the measles outbreak in Minnesota. Let me start with ableism.

Thank you so very much, Jenny McCarthy. Thank you, Andrew Wakefield. Thanks a lot, Autism Speaks. While I won’t go into the extremely non-duplicated, thoroughly debunked, corrupt and hateful so-called “study” of how you think the Measles-Mumps-Rubella vaccine causes autism. I have felt personally responsible and personally attacked because of you. You have made children sick because of my existence. You have murdered over nine thousand children as of July 2015. And the cause of all this pain and destruction? The existence of autistic people. I am autistic. Therefore, you make ME a target. Your hatred of me justifies your actions of denying children their health, their immunity, even their lives. You justify your kills because of me. I am tired of being the cause for the loss of innocent lives.

*****

Now, onto the next two causes, because they are interwoven and intersected. They are Racism and Xenophobia.

Now, when most white American people look at Somali immigrants, what do they see? They see dark skin – race being the previous mark of slavery, and they devalue the person. They see a foreigner – those “evil” people trying to come and take their lives, jobs and livelihood. They see a Muslim – and deem them dangerous, evil terrorists, not realizing that most Muslims HATE those terrorists. (Don’t get me started on some of my Muslim friends’ seething rage.) So, when these dark-skinned foreign so-called terrorists come to them with an issue – their children are getting autism – what do those white American people do? They ignore and deny help to these inferior people. So, what does the ableist, Anti-vaccine camp do? They listen, and recruit soldiers for their own terror. Herd immunity is compromised. And children in Minnesota now have measles, many of them hospitalized because their weak and developing immune systems are defenseless against the onslaught. Now do you see how danger and strife can get a foothold due to racism and xenophobia?

*****

I am not here to bring anybody down, or anybody out. I am simply facing hatred in three intersecting directions of ableism, racism and xenophobia. Now, I know I am not black and an immigrant, but I will fight the diseased rot of ableism, racism and xenophobia right alongside its victims. I do it every day – even in my mind. When children are dying, there is something wrong. One absolutely must speak up for the sake of the future. One must speak up for the sake of the suffering children.

 

Echo Chambers and Yes Men

I wonder if my blog is not more exposed or read because it’s more politically conservative. That worries me. I mean, I’m not exactly an echo chamber, but is the echo chamber what the people really want?

Do people really just want echo chambers?

Why do people just want to be agreed with? Is it pride? Is it the fear of pain when the mind if being stretched? It bothers me that many people only want to be agreed with. I mean, it may involve a little humiliation. It may involve the stripping away of pride. It may involve being vulnerable. Thing is, when your mind grows, it grows out of the confines of the box you put it in. I mean, what if your idea is a bad one? Don’t you want to know that your idea will fail? Plus, when your idea fails, you will be humiliated further than seeking out the advice you needed for it to succeed. You don’t want to be exposed as a fool. That’s the trouble with echo chambers and Yes Men. They will not shield you from being exposed as a fool.