I try to avoid politics in my work because I want everybody to feel welcome on my site. Honestly, I hate just about everybody involved in politics, and I only stay on social media for my blog. I have thought about quitting many, many times. I absolutely hate that every word of mine is judged by those who would twist the very name of love and/or God itself to their specific agendas. I also hate the fact that everything I say and do means I am either a hater or a snowflake. I even fantasize about leaving the Unites States altogether due to the hellish political climate. So, if you want to discuss politics anymore I will not participate. I am tired of walking on eggshells for the right and the left. So, I am now apolitical. I wash my hands of this political climate. Call me Hitler, call me Stalin, call me every swear word in the book. I am done. I must take care of my mental health in order to survive you.
So there is an outbreak of measles in Minnesota among Somali-descended children, spreading to other vulnerable populations. I want you to understand that. What I don’t want you to do is point the finger at me about it. For the longest time, I thought that, being autistic and scary to a neurotypical population that is afraid of me, that I was the cause of unvaccinated measles outbreaks, in Minnesota and Southern California (at Disneyland, no less), especially since Jenny McCarthy literally blamed her son’s autism for all her suffering in life. But, in this case and others, I have already dismissed my existence as a cause of measles outbreaks, especially since now there are more complex, pointed reasons as to why there is an outbreak of measles they are dealing with in Minnesota. I want you to read the next sentences very carefully. That’s why I have separated them out.
The causes of the outbreak of measles in Minnesota are as follows:
- Ableism, represented as Anti-autism
The causes of the Disneyland outbreak in Southern California are as follows:
- Ableism, represented as Anti-autism
These lists are not finished. First, I want to discuss the discovered causes of the measles outbreak in Minnesota. Let me start with ableism.
Thank you so very much, Jenny McCarthy. Thank you, Andrew Wakefield. Thanks a lot, Autism Speaks. While I won’t go into the extremely non-duplicated, thoroughly debunked, corrupt and hateful so-called “study” of how you think the Measles-Mumps-Rubella vaccine causes autism. I have felt personally responsible and personally attacked because of you. You have made children sick because of my existence. You have murdered over nine thousand children as of July 2015. And the cause of all this pain and destruction? The existence of autistic people. I am autistic. Therefore, you make ME a target. Your hatred of me justifies your actions of denying children their health, their immunity, even their lives. You justify your kills because of me. I am tired of being the cause for the loss of innocent lives.
Now, onto the next two causes, because they are interwoven and intersected. They are Racism and Xenophobia.
Now, when most white American people look at Somali immigrants, what do they see? They see dark skin – race being the previous mark of slavery, and they devalue the person. They see a foreigner – those “evil” people trying to come and take their lives, jobs and livelihood. They see a Muslim – and deem them dangerous, evil terrorists, not realizing that most Muslims HATE those terrorists. (Don’t get me started on some of my Muslim friends’ seething rage.) So, when these dark-skinned foreign so-called terrorists come to them with an issue – their children are getting autism – what do those white American people do? They ignore and deny help to these inferior people. So, what does the ableist, Anti-vaccine camp do? They listen, and recruit soldiers for their own terror. Herd immunity is compromised. And children in Minnesota now have measles, many of them hospitalized because their weak and developing immune systems are defenseless against the onslaught. Now do you see how danger and strife can get a foothold due to racism and xenophobia?
I am not here to bring anybody down, or anybody out. I am simply facing hatred in three intersecting directions of ableism, racism and xenophobia. Now, I know I am not black and an immigrant, but I will fight the diseased rot of ableism, racism and xenophobia right alongside its victims. I do it every day – even in my mind. When children are dying, there is something wrong. One absolutely must speak up for the sake of the future. One must speak up for the sake of the suffering children.
Looking over my behavior when I am alone, it disturbs me. I swear, I give obscene gestures to random people that are not there, and I am a constant simmering volcano of emotion. I don’t know where all this anger comes from. My mother does not know about this I don’t like being an angry woman. I don’t like wanting to explode at people all the time. I don’t like having to relive every single day simmering at the edges, and literally stuffing down my emotions with anything I can find in order, like ice cream, to protect everyone else from my feelings.
But, when I look over all the injustice that I received as an autistic person, I get why I am so angry. The rage I feel inside when I see anything that reminds me of my childhood is unbearable at best. Tonight, I saw an episode of “The Goldbergs” which revolved around theater. I never really fit in anywhere in high school, not even theater. I even tried to spell it “theatre” in order to fit in. Then, as I learned later, I was made fun of behind my back for talking to myself. There is a post about that called “Facebook and the Mellaril Nightmare” if you want to read about it. Truth is, the only time I ever really felt accepted in school was on Grad Night. I guess everybody was trying to make a good last impression. Truth be told, I was finally relaxed and relieved that it was all ending.
I spent years trying to find love and acceptance, because I was always unacceptable. I was unacceptable in class, unacceptable with friends, unacceptable in theater (pretentious snobs!), unacceptable in church, even unacceptable in ASAN (for being too politically conservative). Honestly, I am currently an angry, bitter, lonely recluse, and that’s what everybody wants me to be. They only want me to go away. Is it any wonder I am an Angry Autistic Woman?
I’m loving this inclusion and casting of Dr. Latham. However, a colleague in autism brought up a very good point in the storytelling. There is a troubling thing about the narrative, which I think ought to be reconsidered as well as my colleague: the cure narrative. While the cure narrative is the most common in the autism media universe, it is not one which most autistic adults refer to in living. There is a lot of trouble in pushing the cure narrative.
As for one, autism, as it stands today, cannot be cured. There is no cure known for autism. As for Dr. Latham’s radical treatments, they are fine to some extent. But why not show some of the side effects? I like that the treatment Dr. Latham is receiving is shown as temporary or needing to continue. I think we need to continue with that aspect.
2- I think I need to stop for a second and express a point here. There is also a big, foul prejudice reeking in the narrative that we need to address: ableism. Ableism, by definition, is adding stigma to a perceived lack of ability. As I have defined before, adding stigma to the perceived lack of communication is wrong. Even the language, “lack of” being the focus here, adds stigma to autism and other disabilities. It’s as if you have to experience things exactly as the neurotype in power, and all others is wrong and a tragedy. Autism is not a tragedy! The trouble is, there are scared, desperate autism parents looking at this show, hoping to find some answer to “fix” their “broken” child. They turn to risky, strange and even abusive treatments to do this “fixing.” And when those treatments do not work, the child might be permanently scarred, or even killed in some cases. Also, there are broken relationships, running away and suicide to consider. Is it any wonder very few autistic people talk to their families of origin unless forced to? What is there except autism acceptance?
I’ve got a question: Why not consult real autistic adults on their struggles and triumphs? Have you even considered that autistic adults are real people, with real opinions, real knowledge and real experience? Or are we still complete morons in your eyes? So, what about it, Chicago Med? Is Dr. Latham a moron? That is what you say if you do not consider a viewpoint from real life autistic adults.
Recently, I’ve been going over some of my posts. I’ve noticed a pattern of pity and self-loathing. Will I die alone? Am I pretty enough for love? Am I too fat for love? It has come to me what I have been doing, and what drives these posts. I have been listening to what the haters say, and not what the people who love me say. It’s a vicious cycle. The haters scream and shout, while those who love you are drowned out. It’s vicious what I’ve been listening to. Well, it’s time to make a definite change. I’ve come here to say NO MORE. It’s time I reverse my ears and listen to those who really love me – those who say that love is there, even if it’s not in a partner.
Autistic people find love. I have known a chemist/inventor who has been in Time Magazine, and she has been married for years. Of course, no one has to marry their partner, but isn’t that sweet? I have decided this: If I am bound to find a soul mate, they will come at the right time. If not, oh well. Maybe I can look at the other ways people can be loved – you know, without partners.
I’m going to go off script and talk about this – it’s related: Ashley Graham – yes, the plus-size Sports Illustrated swimsuit cover model – says she’s not ashamed of her body. Why should she be ashamed of it? She’s a Sports Illustrated swimsuit cover model! Even now, I can hear the cracking and crumbling of the plaster statue of broomstick beauty dictatorship. I’m not a broomstick, but why does that have to shut me out of love and acceptance? It’s sickening.
The worst part of it is this: It recurs almost every now and then. It’s like a pain that flares up with this trigger or that trigger, and I want it to stop. I want to stop feeling like I am inadequate to find and give/receive love. I’m tired of being disqualified because of things I can barely control, let alone things I can NOT control. I can’t control that I’m autistic. I can’t control that I’m short and stocky. I can’t control your attitude, either. So why lament about it?
The above headline is quite predictable, in my viewpoint. The trouble is, this is the nation which gave birth to modern democracy, in which everybody has a say in their political process – at least since 1975, when most people above 18 have been given “permission” to participate in the process. I have always cherished my right to vote, no matter how hard a person has had to fight and wait for it. Why don’t people use their right to vote? I believe there is a real set of reasons people are disillusioned and disenfranchised – they think their vote does not make a difference. However, there are some reasons why a woman like me might not want to participate in the process:
Most political ads tell you who to vote against, but who am I supposed to vote for? There are usually more than two people running for the office. For instance, I cannot remember the name of the Republican running for Attorney General of Kentucky, but I certainly know about Andy Beshear, the Democrat. (I may even vote for Andy Beshear if I don’t get someone telling me who the Republican candidate is – just to set the haters off!)
Both sides, left AND right, can get to downright screaming and mudslinging. I mean, let’s take the Kentucky Governor’s race. Do I vote for Matt Bevin, a pathological liar, or Jack Conway, Obama’s nasty little minion? I think South Park got the dilemma right when one of their kids refused to vote because the choice was between a Douchebag and a Turd Sandwich.
Nobody wants to talk to me, the independent. Currently, I am a registered Republican, but I am not a pure Republican – maybe it’s because I am a woman, or an autistic? Who knows? Most of the ads and speeches are used to “energize the base” to vote and cancel out the other guys, but who is wanting to try and change minds? I would like to hear a speech or see an ad based on that.
So, which would you like to choose for a leader: A douchebag or a turd sandwich? I think the system, as it is currently, is designed to disillusion and disenfranchise the regular voter, even more so than things like, say, society and Jim Crow laws did in the South. I currently used examples running around in Kentucky, but feel free to apply your own disillusioning political race.
Wow. Thanks a lot, Donald Trump. You have reiterated why I have to go over the same ground in the war for my safety and the safety of others like me. I know I am autistic. I just do not want to be pathologized, pitied and feared for it. Calling autism an “Epidemic” and “out of control” makes it sound scarier and harder than it really is. Do you have any reason why I find that offensive? I find it offensive because it makes me feel like a tragedy. I know I should not listen to people like you, but you invade my head and make tunnels in my brain. You make me think I ought to get off the planet, because that is the only way I can make it a better place. How do I put this? I am not going to get off the planet for you. I am not a tragedy. I am not a burden. I don’t know what I have to do, or how much money I have to make for you to value me, but I am glad I don’t have to prove my value to you. I prove my value to those who really care about me every single day, and none of them are you.
Let me bring up another point to this debate: Leaving aside the fact that the so-called link between autism and vaccines has been left unduplicated, debunked and left the man who published the study without a medicine license, you, Jenny McCarthy and the anti-vaxxers are simply saying this, by withholding vaccines from diseases that maim and kill:
“My child is better off dead or maimed than autistic.”
Thank you very much, Donald Trump. You have proven to me that your reliance on emotional anecdotes and wanton ignorance of science and medicine knows no bounds, and your tongue knows not the poison it carries and strikes into the hearts of your followers.