I feel ignored and undervalued all the time, and I have been all my life.
The most widely-used and well-researched standardized assessment for a variety of mental disorders is the Minnesota Multi-Phasic Personality Inventory, or MMPI (link to decent Wiki article). The test was developed using empirical data, “with clinical scales derived by selecting items that were endorsed by patients known to have been diagnosed with certain pathologies”.
In other words, the experts asked the patients themselves.
Then, those experts compiled the data (the patients’ answers/statements), and distilled them down into a widely-used, highly-respected diagnostic test.
That makes perfect sense to me. Firsthand information can be some of the best information.
But these developers did this…even though the patients were considered (by conventional standards) not to be of sound mind.
That doesn’t change my “that makes sense” verdict; it still makes sense to me to develop a test this way.
What doesn’t make sense to me is that nobody has bothered to do the same…
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Cambria's Big Fat Autistic Blog 
Thank you so much 🙂 I’m sorry you’ve felt that way, too. Lonely place to be ❤